Hayley Okines is a young girl suffering from progeria, which causes symptoms of old age in children. It’s an extremely rare condition, affecting one in eight million, and until recently there was little hope for those afflicted to live past the age of 13.
Filmmaker James Routh has followed her story for close to ten years, and this latest installment of her saga finds her at 13, about to start secondary school and finding hope in a series of drug trials that are showing encouraging results. This film, the third in Routh’s series, follows Hayley and her family for a three-year period, starting in 2007 when she began the treatment, and charting her resilience in the face of seemingly unbeatable odds.
Partners: Rabbit Productions (UK), distributed by All3Media (London)
Length: 60 minutes
Aired: June 2010 (Five, UK)
Rights available: Home entertainment, interactive, licensing, mobile, non-theatrical